{"id":45593,"date":"2024-06-01T08:00:00","date_gmt":"2024-06-01T11:00:00","guid":{"rendered":"https:\/\/thelaker.ca\/?p=45593"},"modified":"2024-06-01T08:00:00","modified_gmt":"2024-06-01T11:00:00","slug":"iwk-telethon-williamswood-boy-defying-odds-with-medical-condition","status":"publish","type":"post","link":"https:\/\/staging-z.thelaker.ca\/?p=45593","title":{"rendered":"IWK TELETHON: Williamswood boy defying odds with medical condition"},"content":{"rendered":"\n<p>[adrotate banner=&#8221;169&#8243;]<\/p>\n\n\n\n<p>[adrotate banner=&#8221;105&#8243;]<\/p>\n\n\n\n<p><strong>The following was submitted to us by the IWK Foundation<\/strong><\/p>\n\n\n\n<p><strong>WILLIAMSWOOD:<\/strong> When Ethan Hackney\u2019s parents, Jenny and Paul of Williamswood, discovered that their two-week-old baby needed surgery for a common digestive issue, they never imagined it would be the best thing that\u2019s ever happened to them.<\/p>\n\n\n\n<p>Ethan was admitted to the IWK, and while waiting for surgery, he suddenly began retaining fluid.<\/p>\n\n\n\n<p>\u201cMy precious baby was so swollen. He looked like he had been stung by 100 bees,&#8221; said Jenny. &#8220;If it weren&#8217;t for the instincts of the nephrologist on-call, it would have taken months for us to realize just how sick Ethan was.&#8221;<\/p>\n\n\n\n<p>Five days later, after many tests, Ethan was diagnosed with an extremely rare and life-threatening kidney disease called Congenital Nephrotic Syndrome. <\/p>\n\n\n\n<p><strong>ADVERTISEMENT:<\/strong><\/p>\n\n\n\n<p>[adrotate banner=&#8221;31&#8243;]<\/p>\n\n\n\n<p>[adrotate banner=&#8221;148&#8243;]<\/p>\n\n\n\n<p>Jenny and Paul learned that he would one day need a kidney transplant to survive.<\/p>\n\n\n\n<p>Now four years old, Ethan\u2019s kidney function continues to be closely monitored. <\/p>\n\n\n\n<p>He receives a weekly infusion treatment in the nephrology clinic to replace the protein his body lacks.<\/p>\n\n\n\n<p>\u201cWhether it\u2019s the door screeners greeting you, the cleaning staff who keep everything immaculate or the department heads, everybody at the IWK works for your child the minute you walk through the doors,\u201d said Jenny.<\/p>\n\n\n\n<p>Ethan is defying the odds when it comes to his condition and is a happy little boy.<\/p>\n\n\n\n<p><strong>ADVERTISEMENT:<\/strong><\/p>\n\n\n\n<p>[adrotate banner=&#8221;71&#8243;]<\/p>\n\n\n\n<p>[adrotate banner=&#8221;93&#8243;]<\/p>\n\n\n\n<p>[adrotate banner=&#8221;34&#8243;]<\/p>\n\n\n\n<p>While it can sometimes be easy for his parents to forget he is sick, they know he will continue to require life-saving treatment at the IWK throughout his childhood. And when the time comes for Ethan\u2019s kidney transplant, they know they are in the best possible hands.<\/p>\n\n\n\n<p>The Hackney family will share their story on the 40th IWK Telethon for Children on CTV, airing Sunday, June 2, from 10 a.m. to 6 p.m. <\/p>\n\n\n\n<p>Tune in to learn more about Ethan and other IWK patients who rely on the generous support of the community.<\/p>\n\n\n\n<p>To donate to this year\u2019s Telethon to help support specialized care for IWK patients like Ethan, please visit www.iwkfoundation.org or call toll-free at 1-800-595-2266.<\/p>\n\n\n\n<p>[adrotate group=&#8221;6&#8243;]<\/p>\n\n\n\n<p>[adrotate banner=&#8221;206&#8243;]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[adrotate banner=&#8221;169&#8243;] [adrotate banner=&#8221;105&#8243;] The following was submitted to us by the IWK Foundation WILLIAMSWOOD: When Ethan Hackney\u2019s parents, Jenny and Paul of Williamswood, discovered that their two-week-old baby needed surgery for a common digestive issue, they never imagined it would be the best thing that\u2019s ever happened to them. Ethan was admitted to the [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":45587,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[957],"tags":[6817,50,121,30,31,1461,6818],"class_list":["post-45593","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ethan-hackney","tag-halifax","tag-hrm","tag-iwk","tag-iwk-foundation","tag-iwk-telethon","tag-williamswood"],"_links":{"self":[{"href":"https:\/\/staging-z.thelaker.ca\/index.php?rest_route=\/wp\/v2\/posts\/45593","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/staging-z.thelaker.ca\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/staging-z.thelaker.ca\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/staging-z.thelaker.ca\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/staging-z.thelaker.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=45593"}],"version-history":[{"count":0,"href":"https:\/\/staging-z.thelaker.ca\/index.php?rest_route=\/wp\/v2\/posts\/45593\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/staging-z.thelaker.ca\/index.php?rest_route=\/"}],"wp:attachment":[{"href":"https:\/\/staging-z.thelaker.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=45593"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/staging-z.thelaker.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=45593"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/staging-z.thelaker.ca\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=45593"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}